Sunday, November 29, 2009
Reminiscing Old Songs
I decided to counteract this misery with listening to old Chinese songs from my childhood. In this day and age google will find me everything I need so I search for “moon represent my heart” and Ms. Teresa Cheung’s u-tube version popped out. Actually I met Ms. Cheung in Vietnam when I was only a child. She was 16 and was a guest of the Taiwanese Ambassador, and sang for us. I remember her being tall and cute, had a mini skirt on. I did not hear about her till she lost her life years later; what a tragedy! I listened to Leslie Cheung’s version…then I listened to pu liao tsing, old song. Again the actress Lin Dai committed suicide. What a sad life. I just cannot stop crying while listening and then I realize that all the singers are dead,,, I gotta find myself some live ones or this will be a bittersweet exercise. Then I found Anita Mui, another by gone goddess… This is not good. Finally, I changed to Susan Boyle singing I Dream a Dream from Les Miserables. At least she is fully alive, although not sure how well; last time I saw her perform on Dancing with the Stars live, she looked kinda wooden and bad,,,… but the song is sad… It is funny how the best songs are usually about tragedy, about fairwells, unrequited love etc… We seem to love this melodramatic stuff.
I am lip singing this, and I think when one has the headphones on, one does not realize how loud one is really singing, because I woke Alan up and since I am singing in Chinese, he has no idea what I am trying to say. He just stared at me in horror, thought maybe I lost my mind…. So Sorry.
Took the computer to the treatment room and did the same; all of sudden three patients that are having drips looked up at me at the same time. I guess I am singing very loud. I hope they like my Karioke voice. LOL. Had to offer them chocolate we bought yesterday in Horb for peace offering…
I am not doing too well with all the infusions, so they are chelating me, which is to taking out heavy metals. I am just going through maintenance, like a car, flush the transmission, change the filters etc….
If they will not give me chemo, maybe tomorrow we can go out and look around a bit; I do get terribly nauseated during the car ride but shopping, now that is uplifting…. I still have lots of life in me to shop ….Cannot walk too far though…..
OK back to my singing, all patients have left for lunch, I am on my own, I can now belt out Moon Represent My Heart. Did you know Kenny G played that music???
I imagine all of my readers singing together.
Saturday, November 28, 2009
Our trip to Horb
Nutrition Tips
1.Stay away from any artificial colors, flavors, sweeteners and preservatives and other chemicals put into food and beverages. This requires you to read the labels and to become educated on what some of the ingredients are in food. Please stop drinking diet and regular sodas immediately. Why not instead have seltzer with a splash of cranberry or any other juice that you prefer?
2. No fried foods. Everything I read says they are very bad for you.
3. Try to eat organic foods wherever possible. Fruits and veggies are sprayed with pesticides and many animals are fed hormones and antibiotics. I think the evidence is inconclusive whether this causes cancer, but why take the chance by ingesting all these chemicals into your body and who needs to risk it when there are so many organic products available now.
4. Cut down (or better yet eliminate entirely)all tobacco products (of course) and coffee and alcohol. Green tea is a much better substitute for coffee drinkers and recent studies show it to have many health benefits. My way of thinking is that any product that you can become addicted to, like coffee, alcohol and cigarettes, have to be bad for you.
5. I find it hard to judge which supplements to take. Studies are conflicting and sometimes show that supplements are unnecessary. However, everything I have read seems to say that without question flax seed oil and fish oil are really good for your system and are anti-cancer oils. I found the flax seed oil with lemon is the best tasting. I also recommend taking acidophiles, which is the good bacteria found in your stomach and is great for digestion. Its in yogurt, but I don't eat yogurt everyday so this is the next best thing. I also recommend taking a powder supplement called Ultima. I buy it in Whole Foods and it has all the valuable minerals and electrolytes in Gatorade, but without the sugar. It is all natural and really great for you.
6. Everyone says eat lots of green vegetables and fruits. I agree, but lots of fruits have high sugar content so I vote for the greens. Jeannette and I have gotten into the habit of juicing using the Jack Lalaine juicer.
7. Stay away or cut down as much as possible on sugar whether in cookies, cakes, candies, ice cream, soda, etc. Watch out for some of the power bars which also have lots of sugar. Lots of studies say that cancer cells thrive on sugar. I don't know if this has been proven to be 100% true, but I think we all know that sugar is fattening and addictive.
8. Move from white to brown. Cut out white bread, white rice, and move to whole wheat products.
9. Cut down on red meat and move instead to organic chicken and fish.
I would love to hear any other good tips to add to the list.
Friday, November 27, 2009
Thanksgiving Day
Our Thanksgiving Day was marked by receiving the results of the cancer chemosensitivity tests. They showed a very aggressive cancer that has a penchant for invading other body organs and is resistant to many typical conventional treatments. It also showed, however, which treatments would be effective against Jeannette's particular cancer based on its genetic makeup. Armed with this knowledge, Dr. Jacob developed an array of medicines to combat the cancer. Some are standard chemotherapy and antibody treatments found in the US and are FDA approved, but others are experimental, innovative and cutting edge. Dr. Jacob leveled with us that this cancer is tough to beat, but she also gave us hope and hope is all we can ask for on this Thanksgiving day.
From Jeannette: I want to defend myself against Alan's accusation that I was just sleeping through the ruckus the other night when he flooded our room. In truth, I was in touch with my spiritual side. Let me explain. For many years, I had a wonderful cat named Sasha, who died from cancer four months ago. Every night I had a routine of patting my bed and calling for Sasha and she would jump up on the bed and curl up next to me and keep me warm and company when I was feeling lonely. Many mornings I would awake with Sasha' derriere in my face, although she often tired of my snoring and would sleep somewhere quieter. In my dream the other night, Sasha and my other dead cat, Tiger, were fighting to protect me and I felt very safe. Then an old bearded man came to me in my dream and told me that I should pay special attention when Dr. Jacob came to me and talked to me about stem cell treatment. I did not know who this man was or what he was talking about. Well imagine my surprise when the next morning Dr. Jacob came to me to talk about a stem cell vaccine! I told her about my dream and the message from the old man, but I think she thought I was not all there.
The best part of my day, however, was talking via Skype with my daughter, Christine, and my sons David and Stanley and Stan's friend Annie. It was so much fun to not only be able to talk to them about what was happening, but also to see them over the internet. It was heaven on earth, we should do this more often, Alan said this is a free service and people would pay to get it, everyone should try it.
Love to all of you and Happy Thanksgiving.
Thursday, November 26, 2009
The Great Flood
Wednesday, November 25, 2009
Daisies Sprouting
This time I looked around carefully and noticed that most of the patients with their mouths open producing the melodious snore looked so much at peace. I hope wherever their loved ones are they can see them at rest and in the best of care. I also remember all of your thoughts and prayers, that I am loved and prayed for. Somehow the flowers that grow from human kindness are more beautiful than anywhere outside. I can even imagine the daisies sprouting from the patient next door’s open mouth. At that thought, I started laughing so loud that the nurses looked up and checked their records probably wanting to make sure I was on a correct infusion and not some laughing gas. Everyone around me seems to be sprouting flowers, I love it! So I guess I will lie down and open my mouth and let everyone knows that I am also at peace,,,,,and let my daisy sprout.
When you pray for me please includes all those in need. Back to snoring, and maybe boring serial killers.
Tuesday, November 24, 2009
Day 8 & 9 in Germany November 23 and 24
One of the other patients here, a gentlemen from Australia is very sick with advanced pancreatic cancer. He was given no hope by his doctors in Australia and he came to Dr. Jacobs for treatment in August and has not left. We have become friendly with his wife Suzy and he was for the first time well enough to join us for dinner on Monday night. We were very excited by this seeming improvement in his condition. However, he took a turn for the worse and was taken to a local hospital to have his gall bladder removed. Jeannette has been saying prayers for him. Likewise, there are many very sick people here and each one has their story of failing treatment in their home country and they come here. We have met several young patients as well which is very upsetting. Jeannette has asked that when you say a prayer for her please also include prayers for all the patients here. Thank you.
Yesterday I went for a 10KM walk in the forest and did my yoga routine. Today, Tuesday, it has been raining all day so I only was able to take a short walk to a local supermarket to buy some necessities. In the morning, we both got heat treatments followed by massage from our gentle, but giant, physical therapist - Ziccor. My back has been much better thanks to regular massages.
NOTES FROM JEANNETTE: I read all the inspirational comments, will always remember Barbara's "JEANNETTE", grateful for Frances being always the first to comment daily, for my ACS's co worker Compassionate Pei and Rosa, for my relatives Josie, for Julie, my Trump buddies Norman and Felice and others , for Peggy ! etc, for Liz's everday lesson. I truly read them over and over, my children Stan's simple love statement. My OCA cronies and My church lunch ladies etc...the wise Linda, Your advice is so uplifting, I count my blessings everyday. I also would add to LIZ's Rooney that I learned to do an act of random kindness everyday not because it makes one feel good (it sure does) but because it is the right thing to do.. With all these blessings I vow to help others in need... As you all have with me ... I truly believe if I cannot be cured with this advance stage cancer, I certainly can live with it with dignity... and function... I LOVE YOU ALL with all my heart and you have all reached into my soul and showed me goodness and kindness. I hope I did not forget any one ..... If so please forgive me you may not be mentioned since I cannot write a 5 page blog but you definetly are in my heart.
WIth all my love JW
Sunday, November 22, 2009
Day 6 & 7 Germany November 21 and 22
With Jeannette spending long hours in the treatment room and often sleeping, I continue to take long walks in the Black Forest. I found to my amazement that when I went to Maps on my iphone, I was able to zero in on Hallwangen, our little village here, and also the Forest. The trails show up so now I have less fear of getting lost. I continue to do my yoga and exercise routine so I can stay in shape to take care of Jeannette. I also talked to my three wonderful children using skype. If you don't have it you definitely should get it. The Skype program can be downloaded for free and all you need is a camera. My Levono laptop came with a camera built in but you can get an external camera at any computer store. In essence you are making a free internet phone call with full video. What could be better? And the reception and clarity was excellent.
Jeannette asks me to send her personal regards to everyone. She has not been feeling well enough to write back to everyone who has sent her e-mails and to all those who have commented on the blog. Know that she loves you all.
Saturday, November 21, 2009
Day 5 in Germany November 19
A message from Jeannette: Last night, I learned the meaning of the word courage. We met three patients. The first one is Diana who was diagnosed with a rare kind of cancer and she had over 50 tumors in her lungs. She had done at least a dozen chemo procedures with Prof. Doctor Vogl in
All these patients are fighting and cherish life; they all had fever numerous times and cherish each minutes with no complaints. I will learn from them. Cherish each minute. I have so much to fight for with Alan by my side and with all your good wishes. One of the nurses brought in his newborn baby; she was so adorable. It reminded me of when my first born
Dr Jacob says the fluid has come back to my lung so tomorrow I will be punctured again to remove the fluid. She also said that the tumors in the pleura are quite thick and numerous but we will wait for the chemo sensitivity test which is expected to come back on Monday or Tuesday before I start a chemo regimen. I told Alan I must get well because we have a purpose:
1) to tell the world about this treatment here
2) To fight for chemo sensitivity testing in the
So with all your support, I will be back stronger and better and I vow to help and tell anyone about this story.
Thursday, November 19, 2009
Day 4 in Germany November 19
With Jeannette sleeping a lot and the weather so clear and crisp, I went for a long run/hike through the Black Forest. There are marked trails in the woods but I take my cell phone with me in case I get lost so I can call the clinic to send out a rescue party (only joking).
Jeannette sends her love and good wishes to all her wonderful friends and family. Your prayers keep her spirits high.
Day 3 in Germany November 18, 2009
Just a note to mention my impression so far of the German hospitals. The two we have been in are very modern, large and clean. The doctors and nurses are extremely friendly and helpful. Everyone speaks English. It is very surprising to me that there seemed to be very few patients at either hospital. Compared to their size, the hospitals were virtually empty.
Jeannette wants everyone to know that, although she is too tired and weak to respond directly to everyone's e-mails, she is grateful for all the love and support. She can't wait to go home in three weeks.
Tuesday, November 17, 2009
Day 2 in Germany at the Privatklinik of Dr. Ursula Jacob
About the Clinic,,
72280 Domstetten-Hallwangen. Telephone is +49 7443 964 24 0 . E-mail is klinik@ursula-jacob.de
The clinic is located in the BlackForest section of Germany. The air is clean, except for the smell of wood burning from all the fireplaces. It is a very bucolic setting with farms and small houses nearby.
The staff of 3 doctors and 12 nurses are extremely competent and very friendly. They are always around. The administrators are exceeding nice. The food is wholesome, tasty and plentiful.
The clinic can accommodate 17 patients but there are less than 10 here now I would guess. There is an extra bed in each room so a spouse/guest can stay and keep the patient company. We will be here one week on an inpatient basis and then move to a nearby guest house (small hotel) and walk to the clinic but still have our meals at the clinic and use its facilities.
Everyone on staff speaks fluent English and it seems like everyone in Germany speaks English. We do not speak German but I recognize a word here and there since my parents spoke Yiddish at home.
The food is excellent - wholesome and fresh and a very nice variety.
Day 1 in Germany
Off to the Airport
Saturday, November 14, 2009
A Personal Note from Jeannette
Crystal Cruise
Welcome
Jeannette and I want to thank so many of her family and friends for their well wishes and prayers. Jeannette asks all of you to pray for her as she embarks upon this treatment. We especially extend our warm thanks to those of you who have helped contribute to the cost of Jeannette's airfare to, and treatment in, Germany.